The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, MDANZ has broadened its scope to include many other neuromuscular conditions. We are proud to have Judy Bailey and Dame Susan Devoy as our longstanding patrons.
We have three regional branches – Northern, Central, and the South Island – that are supported by the national office based in Auckland. MDANZ supports individuals, families and whānau by providing specialist information, practical resources, personalised support services, social networks, campaigns for public awareness and advocacy. And through our research trust, we work to improve care standards and facilitate access to potential treatments for neuromuscular conditions
The MDA provides specialised information, support, advocacy and resources for people with rare neuromuscular conditions and their families.
We also carry out and fund research, as well as help people to access opportunities to participate in clinical trials.